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11/22/91 — Our NICU Journey Day 6

November 22, 2010

Isaac — 592

Molly — 690

(Editor’s note: if you see a term you don’t understand, check the Glossary.)

This was the sign the nurses made for Molly's isolette. You can barely see here there to the left of the sign in her little box. Above the sign, you can see the many sticky notes with directives and other communications between the doctors, therapists and nurses. Sometimes there was even a note for us. What did the world do before sticky notes?


Another day of good reports. Your bilirubin level is down more and you picked up eight grams. Each day, they put you under the bili lights, which looks kind of like a tanning bed. It helps break up the bilirubin in your blood so it does not become toxic. You have to wear a special mask over your eyes to protect them from the lights. I know you’re rooting for Michigan to kick Ohio State’s butt today. Don’t cheer too loudly. They gave you a chest x-ray when we came to say goodnight at 10:00 p.m. I guess we will have to wait until tomorrow to see what your lungs look like.


You started getting lipids (fats) today. Still no real food, just IV nutrients put right into your veins. You are still losing weight, but they tell us everything is A-OK. I don’t see how it can be A-OK when you weigh 65 grams less than what you weighed when you were born, and you were impossibly tiny then. Maybe getting the fats will help. Nana’s sister, Aunt Phyllis came to visit you all the way from Long Island, NY. I think it is pretty amusing that you have two great aunts named Phyllis. One is Nana’s sister on Daddy’s side of the family, and one is Papa’s sister on my side of the family.

2 Comments leave one →
  1. November 22, 2010 12:52 am

    Each one of your journal entries takes me to that place with you. It is so powerful. Wish I could help to give you strength as you relive these days of joy and terror and all the emotions in between. Thank you for sharing your story.

    • November 22, 2010 1:14 pm

      Thank you for reading, Julie. In some ways, going through these journals again was very emotional, but for the most part it has been joyful. We’ve been so lucky. It’s good remind ourselves of that every now and again.

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