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11/25/91 — Our NICU Journey Day 9

November 25, 2010

Isaac — 570 grams

Molly — Not weighed

(Editor’s note: if you see a term you don’t understand, check the Glossary.)

This is me (Susan) sitting next to "Spaceship Molly". It's hard to believe that buried somewhere in that box attached to all that equipment was a tiny baby. If I look shell-shocked, it's because I was. I certainly didn't feel like their mother at this point. It was so frustrating to sit idly by and do nothing, while others helped my babies struggle to survive.


I’m worried about you, pal. Your rates are up, your oxygen is up, your weight is down. They replaced your endotracheal tube (ET)  last night because it still wasn’t right, I hope it helps. You had another ultrasound today. Some good news — your head is healing nicely and your bili level continues to drop a little every day.


Molly girl, I don’t know what to do about you. You and your brother both had a rough night. Your rate and pressure went way up. They think you might have some kind of generalized infection that could be causing some respiratory problems. You were so unstable, they didn’t even weigh you, and they took you off the lipids — some fats that you need to grow — because you need to be under the bili lights. Your rate is down a bit from this morning, but your blood sugar level is still off. I hope you have a better night.

2 Comments leave one →
  1. November 25, 2010 8:39 am

    It is so incredible. Even though we know the outcome of this story, I still sit riveted, waiting for the next post, the next update on your babies, hoping for good days. I can only imagine the intesnity at the time. On this Thanksgiving, here is wishing you and your family love and peace. So very much to be thankful for.

    • November 25, 2010 10:55 am

      I’m so glad you are following our story, Julie. I remember thinking the same kind of thing when I saw “All the Presidents Men” and “Apollo 13” — how can this be so interesting when we already know the outcome? But there are dramatic events in real life that are worth being told again and again. Story telling is at the core of humanness and is perhaps the most important way we connect with people outside our small family circle. Happy Thanksgiving.

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