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12/12/91 — Our NICU Journey Day 26

December 12, 2010

Isaac — 523 grams

Molly — 624 grams


This is what a diaper change looked like on the ISCU. They didn't make diapers small enough for our tiny babies and their practically nonexistent tushies. Instead, the nurses just placed an absorbent pad under the naked little bodies. I remember one of the moms in the Parent-to-Parent support group warning us about a preemie's distinct lack of a derriere. She said she panicked the first time she saw her preemie, thinking the poor baby was terribly handicapped because she did not have a butt. "I was terrified," said the mom. "How would she sit?" The backside of a preemie has no fat deposits, so it looks like an exposed anus. I'm not sure I would have panicked about it, given all the other things that ranked higher on my panic radar, but I was glad for the forewarning, if for no other reason that it was nice to know there was one thing I didn't need to worry about.


Isaac, you are doing great — still on room air at a rate of 10.  They changed a bunch of your lines again. The big problem is that you are still losing weight. But you are going to start back on lipids today. We hope that will help. The trouble is they have to turn off your lipids and hyper-al for the five hours it takes to give you the yeast meds, because they go through the same lines. I got to take your temperature tonight. Rosalee Greenberger, our neighbor two doors away on Lawndale, brought you a new pal, a stuffed boy doll.


Guess what?  You are going to get some food today! Real food! Just a little bit at first, but more each day if you tolerate it well. Your rate went all the way down to four last night, but they put you back up to 12 because you kept having apneic episodes — that means you are just too little to remember to breathe on your own all the time. So they will keep you on 12 so you are comfortable until you get a little bigger. Last night, they even hinted that you may be off the respirator sometime soon, maybe even before Grandma and Grandpa get here. Wouldn’t that be a great surprise for them? I got to give you a bath tonight — a little sponge bath. And Daddy got to hold you for the first time tonight. Our neighbor, Mrs. Greenberger, brought you a pink stuffed doll and it’s waiting for you at home.

One Comment leave one →
  1. December 12, 2010 7:26 am

    Real food!!! xox

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