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1/5/92 — Our NICU Journey Day 50

January 5, 2011

Isaac — 657 grams

Molly — 740 grams


Two more of our regular nurses, Karen and Val. One of our favorite nurses, Jill, has remained a friend since we first met on the ISCU. Somehow, though, she managed to escape Kenn's camera. I'm not convinced that any of our wonderful nurses will be too thrilled with these shots, but we loved them and still think of them often. It's strange to me that Isaac and Molly have absolutely no memory of their long ISCU stay or of any of their wonderful caregivers. I know that's a good thing, but those days and months are etched into my memory.


Only good things, Ike. You had another good gain last night. They keep boosting your feeds a little each day. Dr. Holtzman say you today for the first time in a while and he was really impressed. He thinks you need a flannel shirt, like Daddy’s. You are still up kind of high on your Os (high 30s), but you are doing well overall. They are weaning you off the Dexamethasone (steroid), which could be contributing to the need for more oxygen. I thought as you started to get better, things would be easier for me, but I’m more anxious than ever. Waiting for you is so hard. But you are worth the wait, big guy. Just 28 grams until you reach your birth weight.


You are seven weeks old today, and still can’t quite make it back up to your birth weight. You have gained 88 grams in the last week, though, and they can’t boost your feedings because that would mean more fluids, which isn’t good for your PDA. So they are going to add oil to your feedings to give you more calories without adding fluids. You will be at 27 calories (versus the 24 calories of fortified breast milk versus the 20 calories of regular breast milk). Just 10 grams to go to birth weight. You look so cute, petite and beautiful, it brings tears to my eyes. You have the most perfect, beautiful skin I have ever seen. I long for the day we can be together so I can hold you and love you and show you there is more to the world than just pain.

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