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1/10/92 — Our NICU Journey Day 55

January 10, 2011

Isaac — not taken (very sick)

Molly — 808 grams (with one arm board)

Me, hovering over my very sick little boy. He had so many drugs going into him that they frequently had to change IV sites. He stills bears a nasty scar on his forearm from when his vein ruptured, resulting in an infiltration of the drugs from his IV. Sometimes they would put an IV into his head and had to shave that area of his scalp. He has thick, dark hair that always grew back sticking straight up, which resulted in the nickname of "Ike the Spike".


You are doing better. They got rid of the Ativan today (a sedative) in the hope that you would start breathing more. Your Os are at 50 percent at a rate of 20. You are also off one of the antibiotics. Your puffiness is down a little bit and you are continuing to pee, so it should keep going down. They are going to let you hang out over the weekend and then, guess what? You may get to start eating again on Monday, if you’re feeling better. Wouldn’t that be great? Keep up the good work. I’m very proud of you.


You look a little pale to me today. You are still doing quite well. They may increase your calories on Monday with the oil, but we’ll wait and see. We heard some slightly distressing news about you yesterday. You have something called an ASD — Atrial Septal Defect — a hole between the atria in your heart. Dr. Leder says it might close on its own. We’re not going to worry about that for a while yet. You are on day two of your second course of Indocin. I hope it’s working.

2 Comments leave one →
  1. January 10, 2011 8:43 am

    Just wanted to let you know that I am still enjoying reading your post every day — and still wanting to kiss wee M & I! xoxox

    • January 10, 2011 9:39 am

      Thank you, Rebecca. It’s been interesting reliving this part of their journey. Some of the things I wrote back then, when Isaac was so sick, are good reminders to my present-day self about what is really important. Who knew I would be my own teacher?

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