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1/24/92 — Our NICU Journey Day 69

January 24, 2011

Isaac — Not Weighed (very sick)

Molly — 959 grams

The journals I kept during our stay on the ISCU (NICU) were given to us by Evanston Hospital's Parent-to-Parent Support Group. I had no way of knowing then how precious these journals would become to me. Unlike traditional baby books, these journals were designed with preemies in mind and had places to record the milestones that are so important to parents of babies on the NICU. If you are a preemie parent or you know one, you may be interested in this version that I found called Starting Life in NICU: A baby record book of milestones. Many friends wanted to give us gifts when our babies were born, but did not know what would be appropriate. This would have made a perfect gift.


You are doing very well, little guy. You look big and pink and very comfortable in your home. Dr. Fred says they are going to leave you in peace over the weekend and reevaluate you on Monday. Grandma and Papa are bringing your two great grandmas in to visit you from Michigan for the first time tomorrow. You’ll like them, and they’ll love you. They are starting to wean you from your Fentanyl. No more drugs, buddy.  You’ve got to come back from La-La land.


What’s the deal, Mol? Aren’t we paying enough attention to you? You have had several heart rate drops in the last 12 hours. They even had to bag you this morning.  That isn’t like you. You were so patient while Ike was really sick. Maybe you just need us to pay attention to you for a while. You don’t need to do anything dramatic, though. We are here for you every day and we love you lots. They are giving you some iron now to help you make red blood cells.

To find out more about the keepsake book featured in this post, click on the following link:  Starting Life in NICU: A baby record book of milestones.

(Note: I have not seen a copy of this product in person and have not received any compensation for mentioning it here.)

5 Comments leave one →
  1. January 24, 2011 8:14 am

    Another baby book for preemies that others have recommended:
    (I haven’t seen it in person, either.)

  2. January 24, 2011 9:46 pm

    Wow. I just found you. My son was born at 25 weeks 6 years ago. I’m curious about how your twins are doing now. Do I have to wait for the final installment? What a great project you’re undertaking.

    • January 24, 2011 9:56 pm

      Glad you found us. Actually, you have to wait for the memoir, which I’m writing now. We have been very lucky. You can see by the photos at the top of this site that Ike and Molly are now happy, healthy 19 year olds. They are some of the oldest surviving 24-weekers. It was a long road with many delays and surprises, but we have had fun. Feel free to email me if you have any specific questions. Thanks and I hope you’ll follow our journey.

    • January 25, 2011 12:15 am

      Read Rachel’s amazing preemie story on her blog, 6512 and Growing.

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