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2/24/92 — Our NICU Journey Day 100

February 24, 2011

Isaac — 1156 grams (2.5 pound mark)

Molly — 1493 grams

100 days. That's how long we had been on the ISCU (NICU) at this point. A whole season of the year had passed by on the outside, but Molly and Isaac had spent this whole time — 100 days — in this little corner of the hospital. And yet, we had still not reached their due date. I should still have been pregnant with them for another four or five days.


Great weight gain last night — 34 grams. You finally passed the two-and-a-half pound mark. You have been breast feeding pretty well. Each time you do, you get some free ccs, so keep it up. Daddy and I may come in tonight to see you get a bath. You really like to be held now, and I like to hold you. They completely stopped your Lasix today, so all you are getting is Theophylline and vitamins.


You are a pretty sleep girl today, Molly, just peacefully dozing in your crib. You had a decent weight gain — 17 grams, but Ike gained twice as much as you did, so you better get going. You will have an eye exam and another echo tomorrow.

2 Comments leave one →
  1. February 24, 2011 6:56 pm

    Hey, I just wanted to let you know I’ve been reading your retrospective NICU journey and gaining strength through you posts. My wife had preemie twins (boy and a girl) at 23 weeks just before the new year. We lost our boy on New Years day, but our little girl is still going strong, and we’re optimistic we’ll be bringing her home in a couple more months, although there will no doubt be plenty of ups and downs between now and then.

    Thanks for your updates. They seriously help me keep perspective.

    • February 24, 2011 7:34 pm

      Ryan, thank you so much for your comments. I am truly sorry for your loss and so happy that your baby girl is continuing to progress. I can’t even imagine juggling all those emotions and my heart goes out to you and your family. I’m glad our story has helped in some small way and I hope you can continue to find hope here. Please keep me posted on your daughter’s progress. There will be lots of ups and downs, which is the main reason I decided to share our story. The NICU can be a lonely place, and every day is a new adventure at a time when you just want a smooth ride. My best wishes to all of you. If I may, I’ll give you one little piece of advice that will be hard to follow but very important. It’s key to take care of yourselves now while your baby is still in the hospital and other people are there to help her. Make sure you eat and sleep well, take vitamins, do what ever you have to do to be strong and healthy. You will need that strength when your girl comes home. End of lecture. Be well.

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