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3/11/92 — Our NICU Journey Day 116

March 11, 2011

Isaac — 1473 grams

Molly — Home


This was Molly's first bottle at home, in her new room. It was a traumatic night … for me, not her. The nurses and docs had warned us that since she was only four pounds, she would act like a newborn, even though she was almost five months old. This meant that we could expect her to wake up every hour and a half to two hours for feedings. Her corrected age put her at about 12 days old, but she was still tiny even for a new born. Of course, Molly never really listened to the doctors and she did not wake up after an hour and a half, or even two hours. My mother had given me only one piece of parenting advice: "Never wake a sleeping baby." So I didn't. Instead, about an hour after she fell asleep, I stood by her crib, watching to make sure she was breathing. I even held a mirror up to her mouth and nose just to be sure, even though she was wearing heart and apnea monitors. That girl slept for five hours. I did not sleep at all. Later, my dad said he wasn't surprised. She had spent months in the noise, lights and commotion of the NICU and all she really wanted was a good night's sleep. It would be a long time before I would get that for myself.


We sure do miss you pal. It’s weird having Molly home, but not you. You have been really high on your Os (50 percent at one point yesterday), so they took a CBC to see if you were at all anemic, but you’re fine. No real news about your eyes. The doc says they are the same. You did get another dose of Lasix yesterday. We’ll see you tomorrow.



Home nursing notes:

Molly is a  3 1/2 month old 24 1/2 week preemie  — twin B. Discharged 3/10 from Evanston Hospital. She has a PDA and an ASD. She was taken off Lasix and fluid restriction one week ago and has done well so far with the only notable edema in her slightly puffy eyelids. She was discharged on 1/4 L oxygen per NC and sats were mid – high 90s in the hospital. Her twin is Isaac (or “Ike”) and is planned to be discharged soon. He has been through two episodes of sepsis and is currently working on PO [by mouth] feeds.

Molly takes breast milk well. Mom would like to try and breast feed Molly before each feeding. As of now, she is still having a hard time latching on to the breast. She is to be bathed every third day Parents have also requested that we do the PT/OT exercises listed for Molly (in front of the chart). — Ruth

4 Comments leave one →
  1. March 11, 2011 9:33 am

    Oh honey, I can relate — even though Ava wasn’t a preemie, I did the mirror thing, too. Now, for my second child (if I have one) I think I would probably just sleep 🙂

    • March 11, 2011 2:23 pm

      Yeah, we tend not to hover so much over those subsequent babies. Have you heard this joke:

      How do you clean your first baby’s pacifier if it falls on the floor? You boil it.

      How do you clean your last baby’s pacifier if it falls on the floor? You lick it and wipe it on your jeans.

      A little gross, I know, but also a little true.

  2. Lori Prang permalink
    March 11, 2011 2:45 pm

    Welcome Home Molly!

    • March 11, 2011 3:22 pm

      Remember that first day at home with your girls? Did they come home at the same time?

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