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3/16/92 — Our NICU Journey Day 121

March 16, 2011

Isaac — 1546 grams 

Molly — Home

Such a pretty girl. Our whole concept of size was terribly skewed by these preemies. Molly seemed so big, certainly compared to Ike at this point. But when we compared her to other newborns, she seemed like a petite princess, so much more alert and focused, so much less floppy and round than a typical newborn. Of course, she wasn't a newborn. She was one day shy of five months old, and still under five pounds. Micropreemies near their due date are an odd combination of newborn and older baby, small and delayed in some respects, but more mature and advanced, almost worldly, in others. Poor Ike was still struggling with his feedings. Jill, one of his primary nurses, had been away and we were so happy to have her back. She didn't put up with a lot of nonsense, even from babies. She was pregnant with her own first baby at the time and due in April. Once we were discharged, our relationship grew beyond the walls of the ISCU and we are still close today. It's a friendship I treasure. Jill knows Isaac and Molly almost as well as we do, and always offers an important perspective of someone who knew them (and us) in their darkest days.


Jill is back today, and you always do a little better when she is around. You lost a few more grams last night, so get on the stick. They are saying as soon as you learn to eat better, you can come home.



Home nursing notes:

Molly had an apneic episode during her am feeding (while burping) that did not respond to vigorous stim (see note) and required two manual puffs — mouth to mouth. She gradually responded with higher Sats and color returned to baseline pink. With subsequent feeds, Sat monitor left on and Molly maintained sats in  mid 80s to high 90s. Again, apnea associated with burping only. Seems to do better with positioning that does not lend itself to impeding movement of diaphragm. Spoke with Dr. Lum and he will check with staff and call back, but wants us to continue to watch her very closely. If this happens again, he wants to be notified and will probably want to see her. Stethoscope will be delivered today . See cleaning schedule at front of communications book. Thanks. — Lynne

[As you can see, we were already in virtually daily contact with Dr. Lum, although he had still not seen her outside of the ISCU (NICU). He was (and really continues to be) our savior in many ways. It was terrifying to be home with her alone. At this point we had nursing between 4 to 8 hours a day, but not on weekends. The idea was that both parents would be home on weekends, but Kenn was  just starting his new business and weekends are a busy time in retail, so it was mostly me, at least during the day.]

2 Comments leave one →
  1. Lori Prang permalink
    March 16, 2011 10:02 am

    What a sweet photo and caption! Oh those nurses! How we HATED when they were off or god forbid didn’t have your baby on a given day. I hated the weekends and the temporary weekend nurses. It’s nice that you and Jill are close to this day. We still have contact with our nurse primary nurse Kelly. They were truly life savers! Hurry home Isaac!

    • March 16, 2011 12:47 pm

      The floaters — both nurses and docs — could be a little disconcerting when all the other staff knew us and our babies so well. It was always a bit disappointing to go in to visit the babies and not have familiar faces around or be able to visit with the nurses who would know what questions we would be asking. It did become like an ad hoc family on the unit.

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