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3/18/92 — Our NICU Journey Day 123

March 18, 2011

Isaac — 1611 grams  — 3.5 pound mark

Molly — 1915 grams 

Look at Molly's eyes. The swelling was from excess fluid, which was a result of her heart issues. One week after her homecoming, we took her back to Evanston hospital for her first official check up with her new pediatrician, Dr. Daniel Lum. At that time, Dan's offices were in a different part of the hospital, so we expected to get a two-fer — a check up for Molly and a visit with Ike. We didn't expect she would be readmitted. While pulling into the parking lot, Molly turned blue, her heart rate dropped and she stopped breathing. Luckily, her home care nurse was with us and started CPR. I ran in a panic to the emergency room on the other side of the hospital. Kenn scooped up Molly and ran her back up to the ISCU. She didn't belong there, as they did not allow babies back on the unit once they had been released, but he figured that's where she belonged. The whole ordeal was terrifying, but we were reassured to have "our team" around us and back in charge. Molly was furious about being back in the hospital — backtracking and having other people call the shots are still not her favorite things. Ike, on the other hand, seem pretty happy to have us all back. He had a really good day. Notice in my journal entry about Ike that I was now doing more than just flinging around medical terminology — I actually thought I had a say in what protocol they should follow.

Isaac

We brought Molly to visit you today. Little did we know that she would be checking back in to the ISCU. She turned blue in the parking lot. Don’t ever do that to me. You are doing great. You finally passed three-and-a-half pounds, so you are getting to be a big boy now. And you love to be held and rocked. Your sats have been pretty high, so I’m going to ask the docs whether you really need to be on a ½ liter flow or if we can start to lower it a bit.

Molly

I can’t believe you are back here. We brought you in for your first checkup with Dr. Lum and you turned blue in the parking lot. We couldn’t bring you out of it, so Daddy and your nurse Mary Kay gave you some breaths and ran you up to the ISCU. And now you are back on the respirator at a rate of 35 and Os in the 70s and 80s. What went wrong? You were fine, honestly you were. I’m so frightened for you. And you are very angry at being back here and being intubated again. They are giving you chloral to keep you calm — it’s a mild sedative.

Home nursing notes:

Took PO well for morning feeding. Took to Dr. Lum for 10:30 a.m. appointment. As we were parking, monitor alarmed for heart rate slow. She became dusky fast. Took her out of car seat, but was unable to stimulate her with vigorous shaking. Color “blue”. Gave two breaths, not much improvement. Gave two more breaths and rushed her into the hospital. She was ventilated and stabilized. Yes, a hair raising experience. Thank God we were next to the hospital. Everyone agreed Molly was missing Ike, so she made a grand entrance back at the ISCU! — Mary Kay

[This was not the last time Molly was to turn “blue” — and by blue, we mean blueberry blue. Her feet and hands still occasionally turn this color when she experiences a sudden change in temperature or when she is really cold. And it is still a “hair raising experience” for those who have never seen it before. We have repeatedly told her that blue is not a good people color. Still, I’m amused to reread that even the home care nurses, who barely knew us, were already joking about her and Isaac and their unique experience. I was going to call it black humor, but I guess in this case, it was blue humor.]

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