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4/13/92 (Day 149) — Children’s Memorial Day 1

April 13, 2011


See that look on Molly's face? That's how I felt this day when we had to take Molly down to Children's Memorial Hospital for her heart surgery, which was scheduled for the next day. We left Ike at home with a nurse (up until this point, we had nursing for 8 hours a day, but Isaac could not be left with just any babysitter, and Kenn and I both went downtown with Molly. I'm not sure who's bottle that was on the night stand, but it was definitely my Diet Rite. Still can't believe I got through those days caffeine free. Our experience at Children's was very different than the months we spent on Evanston's NICU. Our first shock — they didn't put her in the NICU. At just five pounds, she was put on the surgical ward with two toddlers and no nurse stationed in the room. I was pretty hysterical. Kenn was adamant that she be moved and, after proving to one of the nurses that Molly's loudest cry could not be heard from more than one foot away, he got his way. A short time later, Molly turned blue and the respiratory therapist screamed that there was no NICU-sized equipment available on the floor. He did a great job bringing her back and getting things set-up for a five-month old who weighed less than the average newborn, but I still think she would have been better off on the NICU. The original plan was that we would go home to Ike and go back to the hospital in the morning for the surgery. The minute Molly turned blue, I made up my mind that I was staying. I slept (or rather didn't sleep) on a recliner that they brought into her room for me. We were in for another long ride.

Home nursing notes:

Charting forms are on their way from CMH. Molly left today at 1:00 p.m. for admission to Children’s Memorial Hospital for her ASD repair.

Appointment with Dr. Lum: Cancelled due to Molly’s scheduled surgery.

2 Comments leave one →
  1. April 13, 2011 4:45 am

    My heart stopped when reading this. It is sometimes so difficult to advocate for our children, but having to do so under these circumstances had to be just beyond terrifying.

    • April 13, 2011 8:31 am

      While the medical care Molly received at Children’s was outstanding, it was a difficult experience to go through as parents. Kenn was less timid than I was at that point and I learned a lot about becoming an advocate for my children — a job that never ends once you become a parent.

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