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4/26/92 (Day 162) — Children’s Memorial Day 14

April 26, 2011

Heres a picture of our girl from earlier in the month, before we took her in for heart surgery. Two weeks at Childrens Memorial Hospital. It seemed like forever. I wish I had kept a journal during that hospitalization, but I was too busy running back and forth between Molly at the hospital and Isaac at home. I do remember feeling utterly frustrated. I remember pacing around her Ohio bed in that large recovery room, being warned over and over again not to look at the other beds, not to violate anyones privacy. There was no privacy. There was no comfort or reaching out. You were alone in a room full of people.

Home nursing notes:

Awake and alert at 12:30 a.m. Easy resp. Took 60 ccs with no problems. Burped well, then awake and quiet after feeding. Had large, loose stool. Awake and fussy at 1:30 a.m. took 20ccs, burped well then rocked to sleep before being returned to crib. Awake and fussy again at 3:00 a.m., took 40 ccs well. Awake and irritable at 5:00 a.m. Took 45 ccs. Held and rocked to sleep, but awake again at 6:00, when he took 15 more ccs, and another 30 ccs at 8:00.

Day nurse: Isaac was awake and alert at 8:00, fussy from 8:30 – 9:30 a.m., asleep finally at 10. Awake, alert and fussing at 11. Diaper changed/ Fed 30 ccs breast milk/Enfamil with no problems. Burped well. Rocked to sleep then placed back in crib. Awake, alert and fussing at 1:00 p.m. Took 33 ccs with no problems and burped well. Rocked to sleep and placed in crib, no apnea/bradycardia spells. Awake, alert and fussing at 3:00 p.m.; given 27 ccs tolerated well and burped well. Given theophylline and Fer-in-Sol at end of feeding. Tolerated well. Sleeping soundly at 4:00; report given to mom.

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