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4/30/92 (Day 166) — Children’s Memorial Day 18

April 30, 2011

The simple technology of the pulse oximeter (pictured here) turned out to be the bane of our existence at Children's. At one point, Kenn and I went together to the hospital to try to get some answers. All we really wanted to know was the game plan. The nurse said we had to ask the doctor, but we were kicked out during rounds and the doctors didn't hang out waiting to talk to parents. Finally, we cornered one of the fellows and asked what they were waiting for to wean Molly off the vent. When the fellow told us that decision was up to the "big boss" (the surgeon), Kenn said that we were done talking to the fellow and wanted to see the surgeon. This did not sit well with the fellow, who told us he had been a pediatrician for more than 10 years and was now a cardiac fellow and blah, blah, blah. I believe Kenn's response was something like: "I don't care if you sit in the right hand side of God. You just told us you weren't the decision maker. We want to talk to the surgeon." It took some time, but we eventually got a face-to-face meeting. When we asked our question, the surgeon said he was waiting for Molly's sats to get up to the high 90s before he would wean her. We told him that she had been released home on a nasal cannula saturating between 92 and 97, he seemed surprised. They started weaning her the next day. I'm fairly certain this is not what the official record reflect, but it's how I remember it, and Kenn concurs.

Home nursing notes:

Received Ike from dad, asleep in crib. Midnight meds given per dad. Woke up crying at 12:05. Changed diaper (loose brown stool), held him and returned him asleep to crib. Woke up crying at 2:00 a.m., drank 20 ccs of breast milk, burped well, passed flatus and had another moderate sized liquid stool. Slept until 3:45, woke up fussy. Took bottle, occasionally grunting, drank 30 ccs 1/2 formula 1/2 breast milk, burped well, passed flatus. Fussy with feeding at 4:3, crying on and off,  dozing without completely waking up. Quiets with pacifier placed in mouth. Woke up crying at 6:00. Drank 30 ccs of milk. Burped well. Small white patch noted on roof of mouth while feeding. Will pass on to day shift. . Fussy and waking frequently.

Slept till 9:45. Took 45 ccs. No vomiting; no apnea or bradycardia.

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